Friday, July 25, 2014

Update on Nora

Recently, Carolyn wrote a summary of some of the issues Nora has been facing the last few weeks (here). This morning, I wanted to summarize some of what's gone down since then. On Wednesday, it was back to the Dr. because she'd thrown up a couple more times. Her pediatrician was concerned that there might be come kidney issues due to her swollen cheeks and high blood pressure. We went to the ER that afternoon and once again, they said nothing as wrong. The ER doc said he'd be "very surprised" if anything was wrong and that it was probably another virus. He told Carolyn & myself we should just go home, but "we can do the blood test if you want to." We told him something more was wrong and an hour later he came back saying she was very anemic.

We then had a pediatrician come in and tell us that he thinks she has Hemolytic-uremic syndrome (HUS). Basically, she got a strain of E. coli, which then lead to HUS. The toxins from the bacterial infection in her intestines cause her red blood cells to be attacked, which then causes her kidneys to not be able to function properly. They admitted Nora to Riverbend hospital Wednesday night and there were several things they wanted to see change. Specifically, her blood pressure & heart rate to go down, and iron levels back up. They put her on blood pressure meds (normal is 90, she was around 130 with spikes of 160) and started weighing all her diapers for urine output to make sure kidneys were working properly. As everyone described what was happening we definitely felt like we'd been through the worst of it. By yesterday evening they were concerned her heart rate was still fairly elevated. Our Dr. called OHSU to ask about increasing some medication and they wanted to see her in person.

I was not expecting her to have to be transferred, but last night, they transported Nora & Carolyn up to Portland and I followed with the other kids. They decided, due to her low hemoglobin levels, that a blood transfusion would be necessary. So, all night she's been on a slow drip of new blood to help her body turn the corner and beat this. Her blood pressure & heart rate is looking good right now. I think overall, Nora is mostly tired and annoyed with being touched by strangers and always getting woken while trying to sleep. Carolyn & I are both pretty tired too. I never expected us to end up at Doernbecher, but it's a great hospital and anything that can help her little body recover is something I can get behind.

Still no word on what's next or how long we'll be here, but overall folks seem pretty positive about where she's at. Fortunately, we have a wide network of friends and family in Eugene & Portland, so we will and have been taken care of very well. Thanks for all your prayers and I'll try to keep updates coming as we get the chance.

1 comment:

MaryJane said...

Oh Greg, So sorry to hear this I will definitely add Nora and your family to my prayers.

Mary Jane (Anna's Mom)